Launch of the Public Facing Pathway to Support Individuals with Sight Loss

Date posted: 18th September 2024

Birmingham, UK

The Public Facing Pathway, a ground-breaking initiative designed to empower individuals, their families and carers throughout the sight loss journey, was officially launched today at the Collaborating for Good event held at Aston University in Birmingham. 

The Public Facing Pathway aims to provide comprehensive support and information at each stage of a person’s sight loss journey, ensuring that no one feels isolated or unsupported. This initiative is a significant extension of the Eye Care Support Pathway, which was launched in November 2023. Developed by the Royal National Institute of Blind People (RNIB) in collaboration with Thomas Pocklington Trust, the NHS, social care organisations, the charity sector and the public, the Eye Care Support Pathway has been instrumental in transforming eye care services. 

Background 

The Eye Care Support Pathway framework was created to integrate non-clinical support into existing eye care pathways. It outlines the essential support required at every stage of the eye care journey, from the initial realisation of sight issues to diagnosis and living confidently with the condition. This framework and the accompanying report were co-produced with individuals with lived experience of sight loss, eye specialists, third-sector organisations, the NHS and social care bodies. 

Key Features of the Public Facing Pathway

The Public Facing Pathway is designed to be a valuable resource for self-advocacy, providing practical, emotional and mental support. It includes useful information, tips for each stage of the journey, and resources from those with lived experience, helping to reduce feelings of isolation. 

Bhavini Makwana, Campaigns and Projects Manager at Thomas Pocklington Trust and Chair of BAME Vision, chaired the Public Facing Pathway Committee. She shared her personal experience: 

“Being told at age 17 that I would go blind was devastating. There was no family history of Retinitis Pigmentosa, and the diagnosis came as a complete shock. I felt isolated and depressed, with no signposting to any support services. This is why the Public Facing Pathway is so important. It provides the necessary support and information to help individuals navigate their sight loss journey.” 

Stages of the Public Facing Pathway 

• Having my initial appointment 

• Having my diagnosis confirmed 

• Support after my diagnosis 

• Living well with my condition 

Between each stage, there are periods of waiting, during which the pathway provides guidance and support. The pathway also addresses three key themes: 

Understanding their eye care journey – What to expect, who they will see, and when. 

Understanding their diagnosis – Knowing the condition, how to manage it, and its implications. 

Accessing emotional and practical support – Connecting with people and organisations that can help manage the condition with confidence. 

The Public Facing Pathway is a vital tool for individuals living with low vision or sight loss, as well as their families, carers and friends. It empowers them to advocate for themselves and access the support they need at every stage of their journey.

For more information, please visit The Eye Care Pathway website at RNIB: The eye care support pathway – eye services

*Image provided by RNIB